Thursday, November 28, 2024
Medical Matters and Boiled Sweets
There are still colored leaves out there, looking a little more tattered and trodden with every passing day. I would like to say that I intentionally and cleverly included my feet in this photo, but that would be a lie. That was a complete accident.
I endured my neurodivergency training yesterday. Neurodivergence, as many of you guessed, is an umbrella term that means people who process and/or express information differently from "normal." (I'm putting that in quotes because I'm not sure any of us are truly standardized in that respect -- we all have our quirks.) This includes people diagnosed with autism or what used to be called Asperger's (but now apparently is not, partly because of Hans Asperger's involvement with the Nazis), as well as people with ADHD, dyslexia, dyscalculia, dyspraxia and other conditions.
The training only lasted an hour and a half and I did learn a few new things. I suppose my awareness was raised even if I may not practically apply that knowledge every day.
Then I went into the non-fiction section and spent about an hour shelf-reading, which was peaceful and satisfying. I found several books that were way, way out of place. This speaks to my own neurodivergence, which probably includes a touch of OCD.
Dave had a doctor's appointment yesterday with a rheumatologist, who thinks he has something called Anti-TNF Lupus-like Syndrome. He's been struggling with facial swelling, rashes, red eyes, vision issues, eczema, ear problems, fatigue, you name it -- and apparently all this can be triggered by treatment with Infliximab for inflammatory bowel disease. He's been taking Infliximab for years. So the doctor gave him some steroids and is going to recommend to his gastroenterologists that he be switched to a different drug for his Crohn's.
He also learned that his hernia surgery has been scheduled for Dec. 6. This has been on the horizon for ages and he's glad to finally get a firm date -- especially since he can use Winter Break to recover. We figure he can recover just as well in Whitstable as here, so we don't think it will affect our holiday plans. He will need to stay several days in the hospital after the operation, though.
We're in for some fun times here at Chez Olga.
Dave's medical literature sternly warned him that he was not to eat for several hours prior to his surgery, including chewing gum and "boiled sweets."
"What the heck is a boiled sweet?" I said.
"I think it's hard candy," he said -- and indeed it is. If I ever knew that hard candy was boiled, I'd forgotten it.
Several nights ago I put the garden cam back out, to see what's wandering around out there in the wee hours. (I gave it a break for several months.) Here's the result -- some good shots of foxes, a couple of neighborhood cats, and of course Olga.
This afternoon we're off to Bray, so I'll be coming to you tomorrow from our hideaway in Berkshire. Happy Thanksgiving, everyone!
Subscribe to:
Post Comments (Atom)
Olga is looking quite chipper after her vestibular incident. Do you notice any residual effects still?
ReplyDeleteI hope that Dave's syndrome resolves with the steroids and a change of drugs. It sounds like he's been through the wringer recently. You three need this getaway to Bray.
Happy Thanksgiving from our side of the pond to yours!
Chris from Boise
She's a bit shakier, a bit more unsteady, but it's a barely perceptible difference. She can still get around quite well and seems 99 percent recovered.
DeleteAll those critters look well-fed and healthy, including Olga. You and Dave both have gone through the wringer lately. I hope the docs get things corrected for Dave. Hope you’ve been feeling better. I’m surprised, after all these years, that this is the first time you’ve heard the term boiled sweets. When I was growing up in NYC, we called them sucking candies. Once I heard them called hard candies, I made the switch. I wonder if people still call them sucking candies.
ReplyDeleteI've never heard "sucking candies," even when I lived in NYC. I'd say that term has fallen out of favor!
DeleteI wouldn't have thought chewing gum would be a problem since it doesn't get swallowed, but rules are rules. I have always known what boiled sweets are, mostly from reading books set in England where the child characters are sent off to boarding school, they eat boiled sweets ans something called a "jam sandwich" which had me puzzled until I learned it was 2 Victoria Sponge cakes with jam in between the layers.
ReplyDeleteI've probably read the term in books too and basically skipped over it, not knowing what it meant.
DeleteInteresting video..initially it seems that the fox is aware of the camera.
ReplyDeleteYes, being long-term on any meds can cause problems..hope Dave can get that sorted soon.
What is "normal"?!! Where would those straight line thinkers be without those of us who think laterally to go around problems?😎
Yes, the fox is definitely sniffing out the camera. And yes, that point was made during the PD -- that neurodivergency is evolution's way of broadening the thinking and problem-solving capabilities of any given group of people.
DeleteYou don't have to put "normal" in quotation marks for me as I am so ****ing normal that it hurts sometimes. In fact I am the most normal person I know. Is it normal for donkeys to bray in Bray? Have a nice break Steve.
ReplyDelete"Bray" must mean something geographical -- it seems like a place name that pops up in the British Isles quite a bit.
DeleteI'm glad the doc was able to figure out what was going on with Dave and it sounds like the symptoms will resolve with steriods and stopping the drug. I'm hoping there are alternatives for Crohns treatment for him.
ReplyDeleteI had to smile to myself, in your video of the yard, I can see your shed. My parents had the exact same shed in their backyard when I was a kid. Hope you guys have lovely trip.
Funny about the shed! I actually hate that shed, but it's good enough for lawn mower storage. Yes, there are alternative drugs for Dave, but they're expensive which is why the NHS has been loath to use them. (I suspect.)
DeleteA boiled sweet sounds kind of disgusting, but then hearing it's a hard candy? I want to find a candy shop and go inside and ask for boiled sweets and see what happens~!
ReplyDeleteDon't break your teeth on them.
DeleteI know! Your average American would have no idea what that means.
DeleteNot to be confused with going to The Berkshires here in western Massachusetts. :0)
ReplyDeleteEnjoy your time away!
Yeah, I never realized the Berkshires were named for Berkshire, but I'm sure that's the connection!
DeleteYou certainly have some fine looking foxes about. And let's face it- cats are wild life. They just are.
ReplyDeleteWell, if it's not one thing it's another with health issues, isn't it? I really do hope that Dave's issues are resolved because all of that sounds miserable!
Have a great trip, Steve. And happy Thanksgiving.
I appreciate the fact that someone put a bell on one of those cats. That at least gives the birds a fighting chance. (Unless they're babies in a nest!)
DeleteIt’s great to see you diving into neurodivergency awareness—it’s such an important topic. I hope Dave finds relief with his new treatment plan and that his surgery goes smoothly. Wishing you both all the best! I just shared a blog post, let me know what you think.
ReplyDeleteThanks for the good wishes for Dave! And yes, neurodivergence is something we should all know about, particularly those of us in education.
DeleteSorry to hear that Dave's been having so much medical trouble. Hope the meds change helps clear up the problems and his hernia surgery goes well. Enjoy your getaway! Happy Thanksgiving!
ReplyDeleteThis hernia thing has been lingering for years so he is desperately ready to get it taken care of.
Deletemedical stuff!!! Dang, i am not a fan. I hope that Dave's discomfort subsides with the new medication. Seems like if one thing gets out of whack the domino effect happens. and then the wheels fall off. Fixing isolated problems is a start to better overall functioning. Our vehicles! Such challenging bits and bobs. Lucky that you are in the UK rather than the USSA, for many reasons - medical reasons especially.
ReplyDeleteWhen neurodivergence limits a persons happiness and living wholly, it must be addressed from all angles. Neurottypicals must step up to ease the awkwardness and misunderstanding because they can! Neurodivergent brains are fundamentally different in how they are "wired" - they are not less than just frustrating. Personal experience...
One of the points made in the neurodivergence PD sessions is that being neurodivergent can be incredibly frustrating!
Deletewell, damn. if the disease doesn't get you the cure does. have you had any word of that little camera's trek through your own intestines or did I miss that post.
ReplyDeletethat looks like the same fox. it just occurred to me, back when the kings and nobles had fox hunts, did they eat the foxes?
have a pleasant little vacay and Thanksgiving.
I haven't heard results from the camera thing yet, and I'm assuming no news is good news. I don't think anyone eats foxes!
DeleteBoth you and Dave sure have had a year with medical stuff. I hope that the doctors can get it all sorted out with Dave's treatment.
ReplyDeleteYeah, it's been kind of a crazy time!
DeleteThere is quite a lot of wildlife activity in your garden. That fox, (if it's the same one) really likes hanging out there.
ReplyDeleteHave fun on you mini escape and Happy Thanksgiving.
I think that is the same fox, but it's hard to tell.
DeleteWell, if it's not one medical thing it's a dozen others. I hope Dave's change of meds relieves the latest misery.
ReplyDeleteAnd I'm glad the school recognizes neuro divergence as a thing nowadays, instead of just labelling nd kids as weird. It's a start. Some of our greatest thinkers have been nd. But in our society we tend to favor linear a to b to c thinking over the nonlinear creative mode. Both have a place. The best teachers understand this, but quite a few teachers aren't so enlightened, and tend to insist that linear is right!
Your school is doing a good thing.
Yes, we could all benefit from thinking about and being more aware of neurodivergence.
DeleteI guess I'm glad that they may have nailed down Dave's issues. If it can be fixed with steroids and a switch to a new drug (which hopefully works as well as the other one) then that would be great! Hope you have a fun time on your trip!
ReplyDeleteYes, this does seem like a big step forward. He was getting so frustrated with having all these apparently unrelated problems -- come to find they're related after all!
DeleteThere should be much more professional development around these issues as it's difficult to work with people who have these conditions.
ReplyDeleteYes, and awareness is the first step!
DeleteHappy Thanksgiving, Steve! Y'all (all three of you!) have had a lot on you this year. Thanks for sharing the fun video.
ReplyDeleteIt has been a little crazy and it's about to be more crazy! I'll be glad when Christmas rolls around and we can get away on our little holiday.
DeleteMedical issues and side effects of medication are the WORST. I hope that Dave can get some relief. Have a wonderful get away! Boiled sweets, huh. I didn't realize that either.
ReplyDeleteThe side-effects thing is so interesting. I had no idea such a syndrome existed.
DeleteYou and Dave probably are about done with your Thanksgiving by now but I hope it was swell for you both.
ReplyDeleteThank you! And I hope yours was too!
DeleteEnjoy your time in Bray.
ReplyDeleteThanks, Andrew!
DeleteBoiled sweets are part of a British way of life particularly in days gone by. We had whole sweet shops with rows and rows of jars of boiled sweets of all description. You may have seen them on your walks although very few sweet shops remain now. Boiled sweets like Murray Mints and Fox's Glacier Mints and Gobstoppers and boiled fruit sweets are still available in supermarkets but it is nothing like going into a sweet shop and seeing the man take the big jar off the shelf and weigh out a bag full for you on the scales.
ReplyDeleteYeah, I haven't seen many old-fashioned sweet shops like that. Maybe in seaside towns like Margate or Broadstairs. In the USA we had similar shops back in the old days but they are also few and far between now.
DeleteI never would have guessed hard candy. I hope you have a wonderful time and that the two of you can forget the medical matters for a bit. I loved the FB pix -- it looks like a great spot for a getaway. Hope the new meds will help Dave. Happy Thanksgiving!
ReplyDeleteI guess I never realized hard candy is boiled!
DeleteBoiled candy is a new term for me too. It sounds comparable to hard candy.
ReplyDeleteI hope Dave is feeling better with a medication change.
The one size fits all system/thinking does not work. Teaching and communicating using a multi-sensory approach usually gets the best results.
Enjoy your holiday!
And somehow it sounds even more quaint as "boiled sweet."
DeleteLondon has some of the best-looking Foxes I have ever seen. They clearly are eating very well. Happy Thanksgiving to the three of you.
ReplyDeleteIt's sad to say, but I think they look good because they don't live very long. It's a tough life out there for urban foxes.
Delete